Turner Syndrome Soc US

The Turner Syndrome Society US (TSSUS) is the largest global organization dedicated to supporting the Turner syndrome community, providing a wealth of resources and programs for individuals and families affected by the condition. Their mission encompasses advancing knowledge, facilitating research, and offering support through events such as the annual national conference and local Butterfly Walks.

TSSUS actively advocates for improved telehealth access and is committed to disseminating updated clinical care guidelines to enhance patient outcomes. Through initiatives like patient-powered research surveys and a variety of educational materials, TSSUS fosters a sense of belonging and community among those impacted by Turner syndrome.

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