Hibm Research Group, Inc

HIBM Research Group is a Los Angeles-based organization dedicated to advancing research and finding a cure for GNE Myopathy, also known as Hereditary Inclusion Body Myopathy. Through their clinical trials and research grant program, they collect genetic and medical information to better understand the disease and develop effective treatments. Their efforts have garnered recognition, including the Jefferson Award, for their commitment to making a difference in the lives of patients and communities affected by muscle tissue loss.

ARM, the co-founded organization by Dr. Babak Darvish, focuses on empowering patients and communities worldwide with knowledge and support. Their dedication to finding a cure for HIBM is evident through their collaboration with patients, such as Kam Redlawsk, who has contributed to raising awareness and creating a patient campaign. With ongoing research and scientific studies, ARM provides hope for patients by exploring potential treatments, like N-Acetylmannosamine, that may improve their quality of life.

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