Debra The Butterfly Skin Charity

DEBRA is the UK's leading support organisation for individuals affected by Epidermolysis Bullosa (EB), often referred to as butterfly skin, and boasts nearly 4,000 members. The charity not only offers essential emotional and practical support to the EB community but also plays a significant role in funding pioneering research to improve treatments and seek cures for the condition.

With various initiatives including volunteering opportunities, charity shops, and fundraising events such as the DEBRA Butterfly Ball, the organisation fosters a supportive network for patients, families, and healthcare professionals. DEBRA also provides resources and guidance for managing the condition and preparing for emergencies related to EB.

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