Ontario Rett Syndrome Association

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The Ontario Rett Syndrome Association (ORSA) is a volunteer-driven non-profit charity dedicated to supporting individuals with Rett syndrome and their families across Canada. With a mission to ensure that these individuals achieve their full potential, ORSA provides essential resources and advocacy to aid in enhancing quality of life.

Founded in 1991, ORSA proudly serves approximately 900 Canadians affected by Rett syndrome. Their vision is to cultivate a world where every person with this rare condition has access to compassionate care and unwavering support, empowering them and their families to thrive.

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